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  11. Korea's Bio Big Data Project: Importance And Challenges Of Governance And Data Utilization

Korea's Bio Big Data Project: Importance and Challenges of Governance and Data Utilization

Jae Sun Kim1, Dae Un Hong1

  • 1College of Law, Dongguk University, Seoul, Korea.

Healthcare Informatics Research
|August 21, 2025

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View abstract on PubMed

Summary
This summary is machine-generated.

The National Integrated Biological Data Construction Project (NIBDCP) requires enhanced governance, ethical data collection, sustainable production, and improved researcher access for successful biological data management in Korea.

Area of Science:

  • Biotechnology and Bioinformatics
  • Data Science and Management
  • Public Health Policy

Background:

  • The Korean government's decade-long National Integrated Biological Data Construction Project (NIBDCP) aims to create a comprehensive biological data framework.
  • The project encompasses data collection, production, provision, and utilization.

Purpose of the Study:

  • To examine the NIBDCP's structure, features, and governance.
  • To identify key recommendations for the project's successful implementation and optimization.

Main Methods:

  • Systematic analysis of the NIBDCP's governance structures, data management protocols, and operational systems.
  • Evaluation focused on institutional roles, consent, data production sustainability, and researcher accessibility.
Keywords:
Biomedical ResearchData CollectionData ManagementEthics

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Main Results:

  • Four critical areas for enhancement were identified: governance framework, data collection protocols, sustainable data production, and data provision/utilization systems.
  • Recommendations include empowering the Secretariat, refining consent requirements, ensuring data quality and scalability, and improving researcher access through data openness and streamlined processes.

Conclusions:

  • Strengthening governance, ethical data collection, sustainable production, and researcher accessibility are crucial for the NIBDCP's success.
  • These improvements will establish a robust model for biological data governance and utilization in Korea.
Informed Consent
Research