Family-Centered Care for Children with Abusive Head Trauma

Area of Science:

• Pediatric Neurology
• Family Medicine
• Child Abuse Pediatrics

Background:

• Family adaptation to severe pediatric neurologic impairment begins in hospital but extends beyond.
• Abusive head trauma introduces unique social dimensions impacting family adjustment.
• Family-centered care principles are vital, yet families struggle in outpatient settings without adequate guidance.

Purpose of the Study:

• To identify challenges families face in adapting to severe pediatric neurologic impairment in outpatient settings.
• To review existing family-focused interventions and engagement opportunities.
• To propose strategies for improving neurology practice to better support these families.

Main Methods:

• Topical review of existing literature.
• Identification of family- and provider-specific navigational challenges.
• Analysis of available family-focused interventions and engagement strategies.

Main Results:

• Healthcare systems present numerous barriers, leading to family isolation and difficulties managing complex care.
• Families often lack sufficient guidance and resources in outpatient and multidisciplinary settings.
• Navigational challenges exist for both families and providers in outpatient care.

Conclusions:

• Addressing systemic barriers is essential for effective family adaptation and care management.
• Enhanced family engagement and targeted interventions are needed in pediatric neurology.
• Neurology practices require strategies to better support families of children with severe neurologic impairment.