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Training and Preparedness among Informal Cancer Caregivers.
Emily Hallgren1,2,3, Jennifer A Andersen4,5, Tess Thompson6
1College of Medicine, University of Arkansas for Medical Sciences Northwest, Springdale, AR, USA. emily.hallgren@med.uvm.edu.
Summary
Most informal cancer caregivers feel prepared for their role, even without formal training. Providing tailored training and support is crucial for both caregivers and patients to improve cancer care delivery at home.
Area of Science:
- Oncology
- Caregiver Support
- Public Health
Background:
- Informal cancer caregivers are increasingly vital as cancer care shifts to home settings.
- Understanding caregiver training and preparedness is essential due to the complex nature of their roles.
Purpose of the Study:
- To explore the training and preparedness levels of informal cancer caregivers.
- To identify the sources of training and perceived preparedness for cancer caregiving.
Main Methods:
- Cross-sectional study involving 374 informal cancer caregivers.
- Survey assessed caregiving experiences, preparedness, finances, health, technology, well-being, and social support.
Main Results:
- Few caregivers had prior healthcare experience (8.0%) or received specific training (7.2%).
- Most caregivers reported feeling prepared, assisting with emotional support, appointments, and home help.
- Some caregivers identified unmet patient needs, particularly in emotional/mental support.
Conclusions:
- Most informal cancer caregivers feel prepared despite limited formal training.
- Caregiver training and support programs are needed to address patient needs and caregiver well-being.
- Future research should focus on developing tailored training for diverse caregiver populations.
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