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Published on: November 22, 2021
Experiences of Advanced Non-Small Cell Lung Cancer Patients with Targeted Therapy Using Journey Mapping: A
Hailing Tu1, Minghui Wang1, Shengmei Yang1
1School of Nursing, Anhui Medical University, 81# Meishan Road, Hefei 230032, China.
Abstract:
Targeted therapies against specific driver gene mutations have become the standard first-line treatment for most patients with advanced non-small cell lung cancer (NSCLC). While these therapies significantly prolong survival, the entire cancer treatment journey remains challenging and distressing. To better understand these experiences, this study employed a qualitative descriptive approach, conducting semi-structured interviews with 18 advanced NSCLC patients receiving targeted therapy, supplemented by patient journey logs. The resulting journey map delineated five stages: diagnosis, initial treatment, maintenance therapy, disease progression, and end-of-life. The analysis identified four key themes characterizing patient experiences at each stage. These findings enable healthcare professionals to identify risk situations and determine optimal timing for support interventions. Similarly, preparing patients for the processes they must undergo and the side effects of medical treatment helps reduce their uncertainty and anxiety, thereby improving their quality of life.
Insights
This study maps the patient journey for advanced non-small cell lung cancer (NSCLC) patients on targeted therapy. Understanding these experiences helps healthcare providers offer timely support and improve patient quality of life.
Area of Science:
- Oncology
- Patient Experience Research
- Qualitative Health Research
Background:
- Targeted therapies are standard first-line treatment for advanced non-small cell lung cancer (NSCLC).
- Despite improved survival, the cancer treatment journey remains challenging for patients.
- A deeper understanding of patient experiences is needed to improve care.
Purpose of the Study:
- To explore and describe the lived experiences of advanced NSCLC patients undergoing targeted therapy.
- To develop a patient journey map and identify key themes across different treatment stages.
- To inform the development of targeted support interventions and enhance patient quality of life.
Main Methods:
- Qualitative descriptive study utilizing semi-structured interviews with 18 advanced NSCLC patients.
- Patient journey logs were used to supplement interview data.
- A patient journey map was created, outlining five distinct stages of treatment.
Main Results:
- The patient journey was delineated into five stages: diagnosis, initial treatment, maintenance therapy, disease progression, and end-of-life.
- Four key themes emerged, characterizing patient experiences throughout these stages.
- Specific risk situations and optimal timing for support interventions were identified.
Conclusions:
- Healthcare professionals can use these findings to proactively identify patients needing support.
- Preparing patients for treatment processes and side effects can reduce anxiety and improve quality of life.
- This research provides a framework for enhancing supportive care in advanced NSCLC.
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