'Finally, in Hands I Can Trust': Perspectives on Trust in Motor Neurone Disease Care
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View abstract on PubMed
Summary
This summary is machine-generated.Trust is crucial for integrated, person-centered care for people with motor neurone disease (MND). Building trust enhances engagement with services and improves overall care experiences for patients and families.
Area Of Science
- Multidisciplinary healthcare
- Patient and family-centered care
- Motor neurone disease (MND) support
Background
- Integrated multidisciplinary care is vital for people with motor neurone disease (PlwMND) and their families.
- Trust is an essential, yet often overlooked, component of effective person- and family-centered integrated care for PlwMND.
- Many PlwMND rely on community services, where trust influences engagement and continuity of care.
Purpose Of The Study
- To examine the delivery of person- and family-centered integrated care for PlwMND.
- To identify effective practices and areas for improvement in MND care.
- To highlight the critical role of trust in co-producing integrated care for PlwMND.
Main Methods
- This perspective paper synthesizes theoretical knowledge and clinical experience.
- It incorporates insights from clinicians, researchers, and individuals with lived experience of MND.
- A proposed care diagram embeds integrated, person-centered values within the MND context.
Main Results
- Trust enables understanding of changing personal priorities and facilitates person-centered care.
- Seven key support domains (practical, social, informational, psychological, physical, emotional, spiritual) are essential for PlwMND and carers.
- Effective integrated care necessitates strong relationships, shared decision-making, respect, and clear communication.
Conclusions
- Trust is fundamental for co-producing meaningful integrated care for PlwMND.
- Flexible, temporally sensitive decision-making models are critical due to MND's progressive nature.
- Enhancing collaborative practices and cross-sector partnerships can improve care experiences for all stakeholders.
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