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Related Experiment Video

Updated: Sep 9, 2025

A Novel Digital Platform for a Monitored Home-based Cardiac Rehabilitation Program

A Novel Digital Platform for a Monitored Home-based Cardiac Rehabilitation Program

Published on: April 19, 2019

How Does Home-Based Palliative Care Impact Informal Carers? A Scoping Review.

L Challis¹, J Ellershaw², D Hughes³

¹Department of Cardiovascular and Metabolic Medicine, Institute of Life Course and Medical Sciences (L.C., J.E., S.M.), University of Liverpool, Liverpool, United Kingdom; Hospice Isle of Man (L.C.), Douglas, Isle of Man.

Journal of Pain and Symptom Management

|August 28, 2025

Summary

This summary is machine-generated.

Home-based palliative care offers support but can burden informal carers. This review synthesizes evidence on the complex impacts of these services on carers of patients with life-limiting illnesses.

Keywords:

Palliative care caregiver home care service home nursing review terminal care

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Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

Published on: June 6, 2020

Area of Science:

Palliative Care
Informal Caregiving
Health Services Research

Background:

Informal carers provide crucial support for patients to receive care and die at home.
While rewarding, caregiving for those with life-limiting illnesses can lead to significant burden and reduced quality of life for carers.
Understanding the multifaceted impacts of home-based palliative care on informal carers is essential.

Purpose of the Study:

To systematically identify and synthesize existing evidence on the impacts of home-based palliative care services on informal carers.
To explore the complex effects experienced by carers of individuals with life-limiting conditions receiving palliative care at home.

Main Methods:

A comprehensive scoping review was conducted, searching multiple databases (MEDLINE, Scopus, CINAHL, Cochrane Library) and grey literature.
Searches covered publications from August 2012 to March 2025, adhering to Joanna Briggs Institute (JBI) methodological guidance.
Inclusion criteria focused on adult informal carers of adults with life-limiting conditions receiving home-based palliative care; thematic analysis was employed.

Main Results:

The review included 173 papers, revealing a complex landscape of impacts on informal carers.
Thematic analysis identified seven interrelated themes detailing the experiences of these carers.
Findings highlight both the supportive and burdensome aspects of home-based palliative care for informal caregivers.

Conclusions:

Home-based palliative care significantly impacts informal carers in various ways, necessitating further research into these complex dynamics.
Evidence synthesis underscores the need for targeted support strategies for informal carers navigating life-limiting illnesses.
Future research should continue to explore the nuanced experiences and needs of informal carers within home-based palliative care settings.