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The Tension Between Enhancing Reproductive Autonomy and Carrier Responsibility: An Empirical Ethics Analysis of
1Department of Thematic Studies, Technology and Social Change, Linköping University, Linköping, Sweden.
Qualitative Health Research
|August 29, 2025
Summary
Preconception expanded carrier screening informs prospective parents about genetic risks. This study reveals that "carriership" is linked to a sense of future-oriented responsibility to prevent potential suffering in offspring.
Area of Science:
- Reproductive Genetics
- Bioethics
- Sociology of Health
Background:
- Preconception expanded carrier screening (ECS) provides information on genetic conditions.
- Identifying "carrier status" aims to inform reproductive choices.
Purpose of the Study:
- To empirically analyze the ethical dimensions of "carriership" in preconception ECS.
- To examine the concept of "preconceptual reproductive carrier responsibility."
Main Methods:
- Qualitative interviews with prospective parents.
- Thematic analysis of interview data.
- Critical ethical analysis contextualized by biomedicalization and feminist ethics.
Main Results:
- A strong link was found between "carriership" and responsibility.
- Three aspects of "preconceptual reproductive carrier responsibility" were identified: self-perceived genetic risk, normative duty to screen, and future-orientation.
- Socially constructed norms influence perceptions of responsible action in screening.
Conclusions:
- Genetic screening shapes social attitudes towards reproductive responsibility.
- Individual autonomy in screening choices is influenced by societal norms and technological context.
- Further reflection on autonomy within ECS practices is warranted.
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