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Co-Producing Patient-Reported Experience Measures With People With Intellectual Disability to Improve Healthcare
Reema Harrison1, Bronwyn Newman1, Beth Catlett1
1Australian Institute of Health Innovation, Macquarie University, Sydney, Australia.
Summary
This study coprogrammed patient-reported experience measures (PREMs) for people with intellectual disability to improve hospital care. The developed PREMs will be used to enhance healthcare quality and reduce harm for this population.
Area of Science:
- Health Services Research
- Implementation Science
- Disability Studies
Background:
- Intellectual disability affects 2% of the global population, leading to significant health inequities and premature mortality.
- People with intellectual disability are often excluded from patient-reported experience measures (PREMs) due to a lack of suitable instruments.
- Improving healthcare quality for people with intellectual disability requires inclusive and co-produced measurement tools.
Purpose of the Study:
- To coprogram patient-reported experience measures (PREMs) for people with intellectual disability.
- To apply co-produced PREMs in Australian hospitals to improve inpatient care quality.
- To inform local quality improvement projects using collected PREMs data.
Main Methods:
- A 3-year multi-method design using coproduction and an implementation science framework.
- Co-producing PREMs with people with intellectual disability, their carers, clinicians, and researchers.
- Applying PREMs in hospitals, assessing their reliability and validity, and evaluating their implementation.
Main Results:
- Development of co-produced PREMs tailored for people with intellectual disability.
- Application of PREMs in Australian hospitals to capture patient experiences.
- Data from PREMs will inform continuous quality improvement initiatives.
Conclusions:
- Co-producing PREMs is essential for inclusive healthcare measurement.
- The developed PREMs will facilitate improved healthcare quality and outcomes for people with intellectual disability.
- This project aims to reduce preventable harm and improve hospital stays for individuals with intellectual disability.
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