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Published on: July 27, 2018
Creating Data Systems to Promote Health Equity
Yuen Lie Tjoeng1,2, Mjaye Mazwi1,2, Andrew Goodwin3
1Division of Cardiac Critical Care, Seattle Children's Hospital, Seattle, Washington.
Systematic disparities can arise when collecting patient data for health services research. This review examines how biases impact data, modeling, and healthcare delivery, proposing solutions to improve health equity.
Area of Science:
- Health Services Research
- Health Equity
- Biomedical Data Science
Background:
- Health equity is a growing concern in health services research and healthcare delivery.
- Existing research highlights the potential for systematic disparities to be compounded during data collection and analysis.
- Structural discrimination and human biases can influence data equity, impacting research findings and care processes.
Purpose of the Study:
- To review mechanisms that introduce disparities in patient data collection and health modeling.
- To identify how these disparities affect the translation of findings into healthcare delivery.
- To propose initial steps for addressing these systemic inequities.
Main Methods:
- Literature review of studies on health equity, data collection, and algorithmic bias.
- Analysis of mechanisms introducing disparities in data and modeling.
- Synthesis of potential strategies for mitigating bias in health research and implementation.
Main Results:
- Data collection and modeling processes are susceptible to structural discrimination and human biases.
- These biases can lead to the perpetuation and amplification of health disparities.
- Implementation of derived algorithms and care processes may also be inequitable.
Conclusions:
- Addressing health equity requires scrutinizing data collection and modeling practices for inherent biases.
- Proactive strategies are needed to mitigate disparities at each stage of the research and implementation pipeline.
- Further research and intervention are necessary to ensure equitable health outcomes.
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