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Child and Parent Perspectives on Daily Functioning after Perinatal Brain Injury.

Lisanne M Baak1, Corline E J Parmentier1, Nienke Wagenaar1

  • 1Department of Neonatology, University Medical Center Utrecht Brain Center and Wilhelmina Children's Hospital, Utrecht University, Utrecht, The Netherlands.

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Summary
This summary is machine-generated.

Children with perinatal brain injury experience significant daily functioning challenges, particularly in cognitive and learning areas. These difficulties impact families and highlight the need for comprehensive care and research.

Keywords:
daily functioningdevelopmental healthneonatologyperinatal brain injurypsychosocial healthquestionnaire study

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Area of Science:

  • Neuroscience
  • Developmental Pediatrics
  • Rehabilitation Medicine

Background:

  • Perinatal brain injury can lead to lasting neurodevelopmental issues.
  • Understanding patient and parent perspectives on daily functioning is crucial.

Purpose of the Study:

  • To explore the strengths and difficulties in daily functioning experienced by children and young adults with perinatal brain injury.
  • To gather insights from both child self-reports and parent-proxy reports.

Main Methods:

  • Cross-sectional questionnaire study involving participants aged 8-25 with hypoxic-ischemic encephalopathy or perinatal arterial ischemic stroke.
  • Thematic analysis of open-ended questions using the International Classification of Functioning, Disability and Health framework.
  • Data collected via child self-report and parent-proxy report.

Main Results:

  • Participants reported strengths in recreation and school learning; parents emphasized personality traits.
  • Cognitive difficulties (attention, memory, processing speed) were commonly reported by both groups.
  • Parents also noted social and motor challenges; participants highlighted learning difficulties. Half of parents reported significant family impact.

Conclusions:

  • Children and young adults with perinatal brain injury face diverse daily life challenges.
  • A comprehensive approach to care, counseling, and research is essential.
  • Addressing the full spectrum of sequelae is vital for improving outcomes.