Aliança AMARTE: A Collaborative Network to Improve Oncologic Pediatric Care in Brazil

Area of Science:

• Pediatric Oncology
• Health Equity
• Collaborative Networks

Background:

• Significant regional disparities in childhood cancer treatment access and survival exist in Brazil.
• Initiated in 2014 with six hospitals, the AMARTE Alliance expanded to 31 institutions by 2024.
• The alliance aims to enhance pediatric oncology care quality nationwide.

Purpose of the Study:

• To establish a collaborative network for pediatric oncology care in Brazil.
• To address inequalities in diagnostics and treatment across geographic regions.
• To foster innovation, research, and specialized training in pediatric cancer care.

Main Methods:

• The AMARTE Alliance operates on four pillars: equalizing diagnostics, standardizing treatment, conducting survival studies, and promoting scientific development.
• Infrastructure and human resources are supported by Fundação Pio XII and St. Jude Children's Research Hospital.
• A semestral assessment (SCORE) monitors member progress and engagement using defined indicators.

Main Results:

• Three engagement reports show progress, with 17 hospitals improving their SCORE.
• Key achievements include a shared data registry, standardized protocols, regular scientific meetings, and a dedicated fundraising group.
• The alliance has fostered a collaborative environment for innovation and learning.

Conclusions:

• The AMARTE Alliance demonstrates the critical role of collaboration in advancing pediatric oncology.
• Challenges remain in ensuring sustained specialist participation and navigating diverse governance structures.
• Developing outcome indicators is crucial for evaluating the long-term impact of the alliance.