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Paediatric end-of-life care and cardiopulmonary resuscitation
Sara Rizakos1, Roxanne Kirsch1,2,3, Kevin Weingarten1,3,4
1Department of Paediatrics, Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada.
Insights
This commentary examines Ontario's new end-of-life care policy for pediatricians. It emphasizes early family engagement and unbiased decision-making to ensure quality care for children with life-limiting conditions.
Area of Science:
- Pediatric Medicine
- Bioethics
- Healthcare Policy
Background:
- Paediatricians frequently care for children with life-limiting conditions.
- A revised policy on end-of-life care was issued by the College of Physicians and Surgeons of Ontario in March 2023.
Purpose of the Study:
- To explore the implications of the new policy for Ontario paediatricians.
- To highlight principles for end-of-life care decision-making applicable beyond Ontario.
- To discuss the impact on clinicians' moral distress.
Main Methods:
- Policy analysis and commentary.
- Discussion of ethical considerations in paediatric end-of-life care.
- Exploration of clinical decision-making processes.
Main Results:
- The policy necessitates careful consideration of resuscitative measures.
- It underscores the need for early and ongoing patient and family engagement.
- It stresses the importance of preventing bias in decision-making, particularly regarding protected characteristics.
Conclusions:
- Effective end-of-life care requires longitudinal engagement and ethical decision-making.
- Clinicians must ensure decisions about Cardiopulmonary Resuscitation (CPR) are free from bias related to a child's race, age, or disability.
- The policy provides a framework to support paediatricians in complex end-of-life care scenarios.
Abstract:
Every paediatrician's career includes the provision of care for children with life-limiting conditions. The College of Physicians and Surgeons of Ontario published a revised policy, "Decision-making for End-of-Life Care," in March 2023; in this commentary we explore the ramifications of this policy for community and acute care paediatricians in Ontario and highlight principles to contextualize this beyond provincial borders. In particular we discuss its impact upon clinicians' moral distress and the importance of: i) early and longitudinal engagement with patients and families, where possible, to contextualize the role of resuscitative measures (if any) in addition to the many other important considerations concerning high quality end-of-life care; and ii) preventing bias and calibrating decision-making with clinical colleagues (including Bioethics) to ensure CPR is never withheld because of a child's protected characteristics such as their race, age, or disability.
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Ethical Issues
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