Optimizing Patient Engagement with Patient-Reported Outcome Measures Across the Cancer Continuum: A Qualitative Study

  • 0Division of Supportive and Palliative Care, National Cancer Centre Singapore, Singapore.

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Summary

This summary is machine-generated.

Patient-reported outcome measures (PROMs) are valuable in oncology but face implementation challenges. Strategies like multilingual formats and timely feedback can improve patient experience and engagement with PROMs.

Area Of Science

  • Oncology
  • Health Services Research
  • Patient-Centered Care

Background

  • Routine implementation of patient-reported outcome measures (PROMs) in oncology settings is challenging.
  • PROMs are crucial for enhancing patient-centered care.
  • This study investigates patient experiences with PROMs in a supportive care program.

Purpose Of The Study

  • To explore patient experiences with the integration of PROMs in routine oncology care.
  • To identify factors influencing PROM uptake, inclusivity, and perceived impact.
  • To understand patient perspectives on PROM usability and accessibility.

Main Methods

  • Qualitative phenomenological study at the National Cancer Centre Singapore.
  • Purposive sampling of seven breast cancer patients using the Distress Thermometer and Problem List (DTPL).
  • Semi-structured interviews and thematic analysis using the Consolidated Framework for Implementation Research.

Main Results

  • Patients found the DTPL validating, with format influencing perceived simplicity.
  • Multilingual and hybrid formats enhanced accessibility, but digital literacy and cognitive load were barriers.
  • Sustained engagement required timely responses, referrals, and symptom management, though response fatigue occurred.

Conclusions

  • Successful PROM implementation hinges on balancing simplicity, accessibility, and clinical relevance.
  • Integrating PROMs into supportive care programs is key for responsiveness and improved oncology patient outcomes.

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