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Adults with Autism Have Numerous Needs, and So Do Their Parents!
Cyrielle Derguy1,2, L Frybourg3, M Dexet4
1Université Paris Cité, LPPS, F-92100, Boulogne-Billancourt, France. cyrielle.derguy@parisdescartes.fr.
Journal of Autism and Developmental Disorders
|September 9, 2025
Summary
Parents of adults with autism spectrum disorders (ASD) need better support. This study identified key needs to improve services for families caring for adults with ASD, with or without intellectual disabilities.
Area of Science:
- Psychology
- Neurodevelopmental Disorders
- Social Sciences
Background:
- Parents of adults with autism spectrum disorders (ASD) experience significant stress and lack adequate support.
- Existing support systems often fail to meet the genuine needs of these families.
- The French context shows delays in supporting families and addressing adult autism.
Purpose of the Study:
- To identify the specific needs of parents of adults with ASD.
- To differentiate needs based on whether the adult has an intellectual disability.
- To inform the development of targeted support strategies for parents.
Main Methods:
- Conducted semi-structured interviews with 30 parents of adults with ASD.
- Utilized inductive thematic analysis to interpret interview data.
- Exploratory study design to uncover nuanced parental requirements.
Main Results:
- Identified five overarching themes of needs, comprising 13 sub-themes.
- Found distinct differences in needs based on the presence of intellectual disability in the autistic adult.
- Highlighted the critical gap between current support and parental necessities.
Conclusions:
- Parental needs in ASD are multifaceted and vary with intellectual disability status.
- Practical recommendations are proposed for formalizing support services.
- Emphasizes the importance of needs-based support for parents of autistic adults.
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