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Research Domains
Language, Communication And Culture
Cultural Studies
Culture, Representation And Identity
The Experience Of Cerebral Palsy Stigma Amongst Adults Living In The Uk And Ireland: A Qualitative Co-designed Project.

Home
Research Domains
Language, Communication And Culture
Cultural Studies
Culture, Representation And Identity
The Experience Of Cerebral Palsy Stigma Amongst Adults Living In The Uk And Ireland: A Qualitative Co-designed Project.

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The experience of cerebral palsy stigma amongst adults living in the UK and Ireland: A qualitative co-designed project.

Kimberley J Smith¹, Jessica Burke², Rachel Lawrence¹

¹School of Psychology, University of Surrey, Guildford, United Kingdom.

|September 9, 2025

View abstract on PubMed

Summary

This summary is machine-generated.

Cerebral palsy (CP) is frequently linked to stigma and discrimination due to a lack of understanding and societal barriers. Addressing these issues requires improved awareness and accessibility for individuals with CP.

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Area of Science:

Neurology
Public Health
Disability Studies

Background:

Cerebral palsy (CP) is associated with stigma and discrimination, but evidence is limited to small qualitative studies.
A co-designed survey aimed to gather data on stigma and discrimination experiences from a larger adult sample in the UK and Ireland.

Purpose of the Study:

To investigate the prevalence and nature of stigma and discrimination experienced by adults with cerebral palsy.
To identify the sources and impacts of stigma and discrimination in various life domains.

Main Methods:

A mixed-methods online survey combining quantitative and qualitative questions was utilized.
Data were collected from 86 participants for the qualitative component and 48 for the quantitative component.

Main Results:

Eighty-six participants shared experiences of stigma and discrimination, categorized into five themes: rigid stereotypes, impact on participation, interpersonal difficulties, systematic discrimination, and negative emotional impact.
Quantitative data revealed that 87.5% of respondents experienced stigma, primarily from the public, classmates, and coworkers.
Key themes included lack of awareness regarding CP heterogeneity, participation barriers (accessibility, relationships), public interaction challenges (visibility, infantilization), and discrimination in employment, healthcare, and the environment.

Conclusions:

Cerebral palsy is significantly linked to stigma and discrimination stemming from misunderstandings of CP's diversity, public communication barriers, inaccessible environments, and negative societal attitudes.
Recommendations include enhancing public understanding of CP and dismantling accessibility barriers to mitigate these negative experiences.