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Spiritual Support for People Affected by Dementia: A Scoping Review.
Emma Wolverson1,2, Tamara Backhouse3, Alice Burnand2
1Research and Publications, Dementia UK, London, UK.
Spiritual support is vital for people with dementia and their caregivers. This review highlights the need for personalized, multifaceted interventions and more longitudinal research to improve care quality.
Area of Science:
- Gerontology
- Psychology
- Healthcare Research
Background:
- Dementia care necessitates a holistic approach, with spiritual support offering meaning and solace to individuals and their caregivers.
- Existing research on psychosocial interventions for spiritual support in dementia care requires systematic mapping across the disease trajectory.
Purpose of the Study:
- To systematically map existing research on psychosocial interventions providing spiritual support for people with dementia and their caregivers.
- To explore the breadth of research concerning spiritual support in dementia care, including interventions, service delivery, and activities.
Main Methods:
- A comprehensive scoping review of electronic databases (MEDLINE, CINAHL, PsycINFO, EMBASE, Web of Science, Cochrane Library) was conducted.
- Included studies were assessed for quality using the Mixed Methods Appraisal Tool and findings were interpreted with people with dementia and family caregivers.
Main Results:
- Twelve papers met eligibility criteria, reporting on interventions for people with dementia, caregivers, staff, care environments, and inclusive worship.
- Most studies were exploratory (only one RCT), with limited longitudinal data and inconsistent outcomes.
- Interventions originated from the USA, Europe, Australia, Taiwan, and Canada, primarily in community and residential care settings.
Conclusions:
- Spiritual support in dementia care should be personalized, multifaceted, and incorporate creative activities reflecting individual preferences and diverse backgrounds.
- There is a significant need for future research employing longitudinal observational and intervention designs to better track changes and improve outcomes over time.
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