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Mapping the Instruments Used to Measure Well-Being on Children With Disabilities: A Scoping Review.

Estrella Torres Cabo1, Mats Granlund2,3, Magnus Ivarsson4

  • 1CHILD, School of Education and Communication, Jönköping University, Jönköping, Sweden.

Child: Care, Health and Development
|September 11, 2025
PubMed
Summary
This summary is machine-generated.

Existing well-being measures for children with disabilities often focus on emotional aspects, neglecting social well-being. Further research is needed to develop comprehensive instruments that capture psychological and social dimensions for this population.

Keywords:
children with disabilitiescognitive accessibilityflourishingmeasuresmental healthwell‐being

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Area of Science:

  • Child Psychology
  • Disability Studies
  • Mental Health Research

Background:

  • Measuring well-being in children with disabilities is crucial for understanding their overall health and development.
  • Existing self-report instruments may not adequately capture the multifaceted nature of well-being in this population.
  • Keyes's dual continua model provides a framework for understanding well-being, encompassing emotional, psychological, and social aspects.

Purpose of the Study:

  • To identify and evaluate self-report instruments for measuring well-being in children with disabilities.
  • To assess the psychometric quality and cognitive accessibility of these instruments.
  • To examine their alignment with Keyes's comprehensive operationalization of well-being.

Main Methods:

  • A systematic literature search was conducted across multiple databases (MEDLINE, ProQuest, PubMed, CINAHL) from 2011 to March 2023.
  • 13 studies were included after screening 724 articles using the SPIDER framework.
  • 10 instruments were critically appraised using the COSMIN checklist for psychometric properties, cognitive accessibility, and alignment with Keyes's model.

Main Results:

  • Included instruments demonstrated fair to excellent psychometric properties.
  • Instruments developed for children with disabilities showed better cognitive accessibility than those for the general population.
  • Well-being was predominantly measured through hedonic (emotional) aspects, with social functioning underrepresented; quality-of-life measures were often used as proxies for well-being.

Conclusions:

  • A comprehensive, validated self-report measure for the well-being of children with disabilities is currently lacking.
  • Current measures tend to emphasize individual emotional well-being over social dimensions.
  • Future research should focus on developing multidimensional instruments that incorporate psychological and social aspects, potentially adapting Keyes's Mental Health Continuum Short Form (MHC-SF).