Wheelchair outcome measurement instruments for children: a scoping review

Haidar Tafner Curi1, Eliana Chaves Ferretti2, Patrícia Coelho de Soárez1

  • 1Departamento de Medicina Preventiva, Faculdade de Medicina, Universidade de São Paulo, São Paulo, São Paulo, Brazil.

Insights

This review maps wheelchair outcome measures for children, finding most focus on manual wheelchair propulsion. Key areas like responsiveness and intra-rater reliability need more research for better clinical practice.

Area of Science:

  • Rehabilitation research
  • Pediatric assistive technology
  • Measurement science

Background:

  • Outcome measurement instruments are crucial for evaluating wheelchair interventions in children.
  • A comprehensive understanding of existing instruments is needed to guide research and clinical practice.
  • Previous reviews have not systematically mapped the landscape of wheelchair outcome measures for pediatric users.

Purpose of the Study:

  • To conduct a scoping review to explore and map wheelchair outcome measurement instruments used for children.
  • To identify the characteristics and psychometric properties of these instruments.
  • To highlight gaps in the current literature regarding pediatric wheelchair outcome measurement.

Main Methods:

  • A scoping review following the Joanna Briggs Institute (JBI) methodology.
  • Inclusion of children (≤18 years) who use manual or motorized wheelchairs.
  • Systematic search of nine electronic databases and grey literature, with descriptive analysis of extracted data.

Main Results:

  • 33 instruments across 27 studies were identified, predominantly for manual wheelchair users.
  • Performance-based outcomes and construct validity/test-retest reliability were most frequently assessed.
  • Responsiveness and intra-rater reliability were least reported psychometric properties.

Conclusions:

  • Current wheelchair outcome measures for children primarily target manual wheelchair users and propulsion performance.
  • There is a significant underreporting of responsiveness and intra-rater reliability, indicating a need for future research.
  • Standardized methodologies and detailed reporting are essential for advancing pediatric wheelchair research and clinical application.
Abstract

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