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From compassion to action: perinatal palliative care at the Bonifratres Medical Centre (2014-2023) - part one
Katarzyna A Urbanska1, Anna Jarosz-Lesz2, Magdalena Wasek-Buko2,3
1Neonatal Unit, BCM The Guardian Angels Hospital of the Brothers Hospitallers of St. John of God in Katowice, Poland. kasiaurbanskaaa@gmail.com.
Insights
Perinatal palliative care, a specialized support model, aids families facing lethal fetal anomalies. This model ensures continuous care from prenatal diagnosis through delivery and beyond, offering crucial support during a difficult time.
Area of Science:
- Perinatal medicine
- Palliative care
- Medical ethics
Background:
- Prenatal diagnostics increasingly identify lethal fetal conditions.
- Diagnosing such conditions is a traumatic experience for families.
- Perinatal palliative care (perinatal hospice) offers specialized support.
Purpose of the Study:
- To present a perinatal and postnatal care model.
- To highlight the importance of continuous palliative care.
- To analyze a decade of operational protocol.
Main Methods:
- Analysis of a perinatal palliative care protocol.
- Ten years of operational data from a specific medical center.
- Focus on care continuity from prenatal to postnatal stages.
Main Results:
- Established a comprehensive perinatal and postnatal care model.
- Demonstrated the effectiveness of integrated palliative care.
- Provided support to families in the Silesian agglomeration.
Conclusions:
- Perinatal palliative care is vital for families with lethal fetal anomalies.
- Continuous care by a single team improves family support.
- The model spans prenatal diagnosis, delivery, and post-neonatal care.
Objectives:
In recent years, advances in prenatal diagnostics have enabled the identification of congenital abnormalities, including genetically determined disorders, at an early stage of fetal development. Diagnosing a lethal fetal anomaly affects the entire family and is often a traumatic experience for the parents. Perinatal palliative care provided by perinatal hospice is a model of specialized care for families following the prenatal diagnosis of a lethal fetal condition.
Material And Methods:
After ten years of operation, we analyzed the perinatal palliative care protocol implemented in the Hospital of the Brothers Hospitallers in Katowice, a part of Bonifratres Medical Centre.
Results:
We aimed to present the model of perinatal and postnatal care developed at the hospital for families receiving such support in the Silesian agglomeration.
Conclusions:
We also wanted to show the importance of perinatal palliative care provided by one team from the prenatal period through delivery until the child's death or until the pediatric hospice provides the care of the child.
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