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Developing a Concept on Ethical, Legal and Social Implications (ELSI) for Data Literacy in Health Professions: A

Vivian Lüdorf1, Sven Meister2,3, Anne Mainz2

  • 1Didactics and Educational Research in Health Care, Department of Human Medicine, Faculty of Health, Witten/Herdecke University, 58455 Witten, Germany.

Healthcare (Basel, Switzerland)
|September 13, 2025
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Summary

Healthcare professionals need data literacy, including ethical, legal, and social implications (ELSI), for effective data handling. The DIM.RUHR project developed an ELSI concept to guide this training.

Keywords:
ELSAELSA conceptELSIELSI conceptdata literacydigital transformationethicshealthcare data managementinformed consentoutpatient healthcareprofessional competenciessocial responsibility

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Area of Science:

  • Health Informatics
  • Medical Ethics
  • Public Health Law

Background:

  • Growing importance of data literacy for healthcare professionals in clinical practice and research.
  • Increasing volume and complexity of health data necessitate understanding its collection, use, and ethical implications.
  • Ethical, Legal, and Social Implications (ELSI) are crucial components of health data literacy.

Purpose of the Study:

  • To develop an interprofessional concept for data literacy education focusing on ELSI for healthcare professionals.
  • To address the challenge of training diverse healthcare professionals in data literacy within the DIM.RUHR project.
  • To create a foundational ELSI concept applicable to outpatient care and research settings.

Main Methods:

  • Development of an ELSI concept based on a learning objectives matrix and literature search.
  • Iterative design-based research approach involving interprofessional experts from various fields.
  • Collaboration with project partners to integrate the ELSI concept into data literacy education.

Main Results:

  • Identification of four crucial categories for the ELSI concept: philosophy of science, ethics, law, and social aspects.
  • Philosophy of science includes understanding scientific principles, hurdles, and opportunities.
  • Ethics covers biomedical principles and technological assessment; law addresses permission and self-determination; social aspects examine health inequalities and power dynamics.

Conclusions:

  • The developed ELSI concept provides a framework for orienting healthcare professionals in data competencies.
  • It aims to offer a holistic view of challenges and potential in health data management.
  • The DIM.RUHR project will create open educational resources based on this ELSI concept for tiered skill development.