Preference-oriented quality of life monitoring and linkage with clinical registry data: study protocol of a randomised clinical trial in patients with lung cancer (LePaLuMo Study)
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View abstract on PubMed
Summary
This summary is machine-generated.This study evaluated an electronic quality of life (QoL) monitoring system for lung cancer patients. The system aims to improve QoL by providing real-time feedback to patients and physicians, potentially reducing the need for QoL therapy.
Area Of Science
- Oncology
- Health Services Research
- Digital Health
Background
- Quality of Life (QoL) monitoring in routine cancer care remains a challenge.
- An effective QoL monitoring system with tailored therapies has been developed and validated in breast and colorectal cancer patients.
- Adaptations for broader use include electronic QoL measurement and patient/physician preference integration.
Purpose Of The Study
- To investigate the effectiveness of an adapted electronic QoL monitoring system in lung cancer patients.
- To assess if the system reduces the need for QoL therapy compared to standard care.
- To evaluate the system's usability across different healthcare settings and regions.
Main Methods
- A 2-arm, prospective, pragmatic, multicentre randomized clinical trial.
- Lung cancer patients assessed using electronic EORTC QLQ-C30 and QLQ-LC29 questionnaires.
- Intervention group received real-time QoL feedback linked to a multi-professional network; control group did not.
Main Results
- The primary endpoint is the proportion of patients needing QoL therapy at 6 months post-entry.
- QoL data linked with the Bavarian Cancer Registry for analysis.
- Investigators hypothesize a lower proportion of patients needing QoL therapy in the intervention group.
Conclusions
- This is the first study to assess an adapted QoL monitoring system incorporating patient and physician preferences.
- The system demonstrates high generalizability by including inpatient/outpatient care and multiple regions.
- Findings will inform the broader implementation of QoL monitoring in lung cancer care.
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