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Parent Perspectives: Menstruation and Menstrual Hygiene Management for Autistic Daughters
Glynnis Jones1, Samantha Helsley2, Rebecah Fox3
1Glynnis Jones, OTD, OTR/L, is Assistant Professor, Occupational Therapy, Moravian University, Bethlehem, PA; jonesg02@moravian.edu.
Summary
Parents of autistic daughters face challenges managing menstruation and menstrual hygiene. Occupational therapy can help by understanding these lived experiences to improve support for autistic individuals and their caregivers.
Area of Science:
- This study falls under the domain of developmental disabilities and occupational therapy.
- It specifically addresses the intersection of autism spectrum disorder (ASD), menstruation, and daily living activities.
Background:
- Menstruation and menstrual hygiene management (MHM) are crucial activities of daily living.
- These practices are often challenging for individuals with autism spectrum disorder (ASD).
- Parental insights are valuable for understanding and addressing these challenges.
Purpose of the Study:
- To explore the perspectives and lived experiences of parents of autistic daughters regarding menstruation and MHM.
- To identify challenges and effective strategies from the parental viewpoint.
Main Methods:
- A qualitative, phenomenological study design was employed.
- Virtual semistructured interviews were conducted with eight parents (seven mothers, one father) of autistic daughters.
- Inductive thematic analysis was used to analyze interview transcripts.
Main Results:
- Parents reported inadequate medical expertise in women's health for autistic individuals.
- Themes included heightened sensory experiences, limited menstrual awareness in autistic individuals, and parental dependency.
- Parental feelings, preferences for menstrual products, and successful management strategies were also identified.
Conclusions:
- Parents encounter significant difficulties supporting autistic daughters through menstruation and MHM.
- Occupational therapy practitioners can enhance their support by understanding these parental experiences.
- This knowledge can inform occupational therapy practice to improve participation and performance in MHM for autistic individuals and their caregivers.
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