Mental health and work overload in informal caregivers: a mixed-method study

Area of Science:

• Neurology
• Public Health
• Ergonomics

Background:

• Stroke is a leading cause of disability globally, significantly impacting daily activities and necessitating caregiver support.
• Informal caregivers play a crucial role in managing stroke survivors' needs, often facing substantial personal challenges.

Purpose of the Study:

• To evaluate the mental health and work overload experienced by informal caregivers of stroke survivors.
• To analyze caregiver burden using an ergonomics activity approach.

Main Methods:

• A mixed-methods approach was employed, involving 76 informal caregivers.
• Quantitative data collected using the Self-Reported Questionnaire-20 (mental distress) and Zarit Burden Interview (work overload).
• Qualitative data gathered through interviews and ergonomics activity analysis.

Main Results:

• Prevalence rates for mental distress and work overload were 44.7% and 64.5%, respectively, showing a strong correlation (r=0.707).
• Caregiver mental distress was linked to patient comorbidities and illiteracy.
• Qualitative analysis revealed caregivers' routine descriptions and profound physical, mental, and emotional exhaustion.

Conclusions:

• Findings underscore the urgent need for structural enhancements in social and health programs.
• Targeted interventions are required to mitigate the burden on caregivers of stroke survivors.