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Ableism and Structural Inequities: A Refugee Child With Developmental Disabilities.

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This case study shows how refugee children with disabilities face significant health care barriers. Addressing systemic inequities and cultural responsiveness is crucial for providing equitable pediatric care.

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Area of Science:

  • Pediatric Health
  • Health Equity
  • Disability Studies

Background:

  • Refugee families, particularly those with children experiencing developmental disabilities, encounter multifaceted systemic barriers within healthcare systems.
  • These barriers include communication difficulties, cultural misunderstandings, lack of developmental accommodations, and misinterpretation of behavioral challenges.

Purpose of the Study:

  • To highlight the intersectional inequities faced by refugee children with disabilities in healthcare settings.
  • To underscore the need for systemic changes to improve accessibility and inclusivity in pediatric care.

Main Methods:

  • A case study approach examining the experience of a 5-year-old Syrian refugee child with suspected autism spectrum disorder.
  • Analysis of systemic barriers including communication, cultural factors, developmental accommodations, insurance status, and health records.

Main Results:

  • The child's prolonged hospitalization was marked by significant challenges due to unaddressed developmental needs and cultural misunderstandings.
  • Structural issues such as lack of insurance and incomplete health records exacerbated care inadequacies.

Conclusions:

  • There is a critical need to address intersectional inequities in pediatric care for refugee children with disabilities.
  • Implementing consistent interpreter services and frameworks like the WHO ICF can foster culturally responsive and inclusive healthcare delivery.