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Inflammatory Bowel Disease Advice Lines: A Scoping Review.
Naomi Hare1, Christine Norton2, Peter Irving3
1Guy's and St Thomas' NHS Foundation Trust, London, United Kingdom.
Inflammatory Bowel Disease (IBD) advice lines support patients with unpredictable conditions. More research is needed to confirm their clinical and economic benefits and understand patient experiences.
Area of Science:
- Gastroenterology
- Health Services Research
- Patient Support
Background:
- Telephone and email advice lines are crucial for bridging primary and specialist care for patients with Inflammatory Bowel Disease (IBD).
- These services support individuals managing unpredictable disease courses.
Purpose of the Study:
- To systematically review and synthesize evidence on Inflammatory Bowel Disease (IBD) advice line services.
- To identify research gaps to guide future investigations.
Main Methods:
- A scoping review was conducted using the patterns, advances, gaps, evidence, and research (PAGER) framework.
- Searches included CINAHL, PubMed, and EMBASE databases, with data extracted by two independent reviewers.
Main Results:
- Seventeen full-text publications and 22 abstracts (2006-2023) were analyzed.
- Four key patterns emerged: advice lines as complex interventions, drivers of use, patient outcomes, and economic impact.
Conclusions:
- Empirical evidence on the clinical and economic effectiveness of IBD advice lines is limited.
- These nurse-led services act as complex interventions, potentially preventing acute care use and redirecting patient management.
- Further research should evaluate clinical/economic impact, patient experience, and non-user characteristics.
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