Development of the "JPCC Barriers to Pediatric Colostomy Care Scoring System": A Modified Delphi Study

Area of Science:

• Pediatric Surgery
• Global Health
• Health Services Research

Background:

• Pediatric colostomy care in low- and middle-income countries (LMICs) presents significant clinical, social, and economic challenges.
• These challenges negatively impact patient outcomes and quality of life for children with colostomies.

Purpose of the Study:

• To identify key barriers affecting pediatric colostomy care in Southern Africa.
• To develop a validated scoring system for assessing these barriers.

Main Methods:

• A modified Delphi study involving 23 participants (12 healthcare professionals, 11 caregivers) in Southern Africa.
• Utilized online REDCap surveys for barrier identification (Round 1) and relevance rating (Round 2).
• A virtual expert panel refined statements in Round 3 to finalize the scoring system.

Main Results:

• Consensus was reached on all identified barrier statements by participants.
• A 36-item JPCC (Joint Pediatric Colostomy Care) barriers to colostomy care scoring system was finalized.
• The study achieved a 57.5% participation rate in Round 1 and 16 participants completed Round 2.

Conclusions:

• This research introduces the first scoring system tailored for pediatric colostomy care barriers in Southern Africa.
• The JPCC scoring system provides a practical tool for research, clinical evaluation, and advocacy.
• Multicenter validation is recommended to ensure broader applicability of the scoring system.