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Parent Needs, Recommendations, and Systemic Challenges Affecting Pediatric Hypertension Detection
Abbas H Zaidi1,2, Erica Sood1,2,3, Sarah De Ferranti4,5
1Nemours Children's Health Cardiac Center, Wilmington, Delaware, USA.
Insights
Parents and clinicians identified barriers to diagnosing and treating pediatric hypertension (HTN). Parent-recommended strategies, like telehealth and better education, can improve detection but need to align with health system constraints.
Area of Science:
- Pediatric Health
- Implementation Science
- Public Health
Background:
- Pediatric hypertension (HTN) affects 3%-5% of US children, with low diagnosis and follow-up rates.
- Parental and clinical skepticism towards elevated blood pressure (BP) readings and antihypertensive medications necessitates stakeholder-informed strategies.
- Significant gaps exist in pediatric HTN care, particularly for diagnosed children with prolonged follow-up care interruptions.
Purpose of the Study:
- To examine parents' perceived needs and recommended strategies for improving pediatric HTN detection.
- To identify contextual health system challenges impacting pediatric HTN care.
- To develop stakeholder-informed strategies for enhancing pediatric HTN detection and management.
Main Methods:
- Qualitative study involving semi-structured interviews with 13 parents and 25 healthcare clinicians from 10 diverse pediatric primary care clinics.
- Participants included parents of children with stage 2 BP readings and HTN diagnosis, experiencing care gaps of ≥1 year.
- Thematic analysis guided by the Consolidated Framework for Implementation Research (CFIR) was used to identify key themes and recommendations.
Main Results:
- Parents reported limited clinical discussions on pediatric HTN, logistical barriers (social determinants of health, finances, insurance), and scheduling conflicts.
- Clinicians cited systemic constraints: time limits, staffing shortages, and inadequate resources for social determinants of health needs.
- Parents recommended enhanced education, flexible scheduling, telehealth, remote BP monitoring, and improved care coordination.
Conclusions:
- Parent-recommended strategies offer potential solutions to pediatric HTN detection challenges.
- Addressing logistical and systemic barriers is crucial for effective pediatric HTN management.
- Aligning parent-informed strategies with health system realities is essential for improving pediatric HTN detection and care.
Abstract:
Pediatric hypertension (HTN) affects 3%-5% of children in the United States, yet only 25% are diagnosed and 60% lack recommended follow-up care. Skepticism about elevated blood pressure (BP) readings and reluctance to use antihypertensive medications by parents and clinicians highlight the need for stakeholder-informed strategies to address these challenges. This study examined parents' perceived needs, their recommended strategies to improve HTN detection, and contextual health system challenges. Parents and clinicians from 10 pediatric primary care clinics participated in semi-structured qualitative interviews. Only parents of children with documented stage 2 BP readings and a HTN diagnosis, but with gaps in care of 1 year or longer, were included. Participants were recruited from clinics in diverse communities. Thematic analysis identified major themes and recommendations guided by the Consolidated Framework for Implementation Research (CFIR). A total of 38 stakeholders participated, including 13 parents and 25 healthcare clinicians. Parents reported limited discussions in the clinic around pediatric HTN, logistical barriers related to social determinants of health, including financial burdens and insurance issues, and scheduling conflicts. Clinicians cited systemic constraints such as time limitations, staffing shortages, and insufficient resources to address social determinants of health-related needs. Parents recommended strategies, including enhanced education on pediatric HTN, flexible scheduling, telehealth, remote BP monitoring, and improved care coordination, to overcome barriers and align with systemic improvements. Parent-recommended strategies can address pediatric HTN detection challenges. However, aligning these strategies with systemic constraints is essential for effective, stakeholder-informed improvements in HTN detection.
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