A Qualitative Exploration of Policy, Institutional, and Social Misconceptions Faced by Individuals with Multiple
Susan J Yousufzai1,2, Elaine Psaradellis3, Rohini Peris3
1Faculty of Health Sciences, Ontario Tech University, Oshawa, ON L1G0C5, Canada.
None:
Multiple Chemical Sensitivity (MCS) is characterized by recurring symptoms in response to low-level chemical exposures that are typically well-tolerated by the general population. Despite the debilitating health impact of MCS, public indifference and prevailing skepticism often result in stigma, misinformation, and systemic barriers that obstruct individuals' access to essential environments. This qualitative study examined the lived experiences of individuals with MCS, focusing on how their condition is misunderstood and the factors that contribute to misconceptions about MCS. Seven focus group transcripts were analysed using thematic analysis in NVivo. Participants (aged 50-60) were drawn from various regions in Canada. One main category emerged from the analysis, centred on misconceptions influenced by policy and community factors. This category was divided into four themes, each with subcategories: (1) Psychological misattribution of MCS, (2) Healthcare and Institutional Gaps, (3) Policy Barriers, Compliance, and Resistance, and (4) Commercial Influences and Misleading Practises. These themes suggest a need for improvements in policies and transparency related to chemicals used in household and personal-care products, institutional compliance with fragrance-free guidelines, and increased awareness of MCS to reduce stigma and misconceptions. Addressing these issues can lead to adequate accommodations and support systems, which significantly improve quality of life.
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