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Optimising general practice support for autistic adults: a realist review protocol.
Kelly Birtwell1, Claire Planner2, Tracy Epton2
1University of Manchester, Manchester, UK. Kelly.birtwell@manchester.ac.uk.
Systematic Reviews
|September 30, 2025
Summary
Autistic adults face healthcare barriers. This realist review examines how general practice can better support autistic individuals, aiming to improve healthcare access and outcomes for this population.
Area of Science:
- Healthcare accessibility for neurodivergent populations.
- Autism spectrum disorder and general practice.
- Intellectual disability and healthcare support.
Background:
- Autistic individuals experience higher rates of mental and physical health conditions compared to non-autistic people.
- Barriers in general practice, including communication differences and environmental factors, lead to unmet health needs and lower satisfaction among autistic adults.
- Existing research findings on supporting autistic adults in primary care are not effectively disseminated.
Purpose of the Study:
- To investigate the mechanisms, contexts, and outcomes of general practice support for autistic adults throughout their lives.
- To identify how, why, and to what extent general practice supports autistic adults, with or without intellectual disabilities (ID).
- To inform improvements in general practice services for autistic individuals.
Main Methods:
- A realist review, a theory-driven systematic approach, will be employed.
- Extensive searches of electronic databases (e.g., MEDLINE, PsycInfo) and grey literature will be conducted.
- Stakeholders, including autistic individuals and healthcare professionals, will be involved throughout the review process.
Main Results:
- Identification of relevant contexts, mechanisms, and outcomes related to general practice support for autistic adults.
- Development of a programme theory to explain effective support strategies.
- Identification of available resources for general practice to support autistic adults.
Conclusions:
- Findings will guide general practices in implementing helpful service adaptations.
- Guidance will empower autistic individuals to better access necessary support.
- The study aims to enhance access to and engagement with general practice, ultimately improving autistic individuals' health and wellbeing.
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