Flashing lights, fading facts. The problem of poor seizure education on Tiktok

TikTok has rapidly become one of the most influential social media platforms, so understanding the quality of medical content on this platform is essential for evaluating its role in public health communication. This study aimed to assess the quality and educational value of non-ictal seizure-related information on the TikTok by analyzing content associated with the relevant seizure-related keywords.

A cross-sectional analysis was conducted on TikTok videos retrieved using the platform's default "Top" search function for a selected health-related hashtag. Engagement metrics (likes, comments, shares) were collected, and videos were categorized by source and content. Videos were evaluated for quality and reliability using the DISCERN instrument and the Global Quality Scale (GQS).

The majority of analyzed videos were produced by non-healthcare professionals and scored low on both DISCERN and GQS assessments. Personal experiences and non-evidence-based content were prevalent. Despite low educational value, these videos demonstrated high levels of public engagement, with total views exceeding 60 million. A positive correlation was found between likes, comments, and shares, suggesting widespread appeal of the content regardless of quality. Videos created by healthcare professionals, although fewer in number, consistently scored higher in reliability and quality.

The overall quality of health information on TikTok remains low, highlighting the risks associated with user-generated medical content. However, the platform's popularity and the high public interest in health topics present an opportunity for meaningful intervention. Increased participation by healthcare professionals and academic institutions could significantly improve the accuracy of health communication and better serve public health needs on this influential platform.