An updated framework for characterizing patients with pediatric feeding disorder

Area of Science:

• Clinical Medicine
• Pediatrics
• Healthcare Management

Background:

• Pediatric feeding disorder (PFD) requires a standardized approach for characterization.
• A multidisciplinary case report form (CRF) framework was previously established.
• Field testing and database creation are crucial next steps for this clinical tool.

Purpose of the Study:

• To assess the acceptability and feasibility of the PFD CRF.
• To evaluate the clinical implementation of the PFD CRF across multiple feeding programs.
• To gather end-user feedback for CRF refinement.

Main Methods:

• Data collection from 80 patients undergoing multidisciplinary team evaluations.
• Involvement of three feeding programs in the CRF's initial development and testing.
• Analysis of collected data and feedback from multidisciplinary care teams.

Main Results:

• The PFD CRF demonstrated acceptability and feasibility in real-world clinical settings.
• Common data collection across institutions was found to be practical.
• Insights were gained for future research directions and dissemination strategies.

Conclusions:

• The PFD CRF is a viable and practical method for standardized data collection.
• The tool supports insights for advancing PFD research and clinical practice.
• The revised CRF is positioned for broader implementation and dissemination.