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Impacts of Using Peer Online Forums in Mental Health: Realist Evaluation Using Mixed Methods.
Fiona Lobban1, Neil Caton1, Anna Lindroos Cermakova1
1Spectrum Centre, Department of Health Research, Lancaster University, Lancaster, United Kingdom.
Peer online mental health forums provide accessible support, largely benefiting users through increased self-efficacy and well-being. Positive impacts depend on user-friendly design and effective moderation for safe, supportive online interactions.
Area of Science:
- Mental Health Research
- Online Support Systems
- Digital Health
Background:
- Peer online forums offer accessible, anonymous mental health support.
- Understanding the mechanisms and beneficiaries of these forums is limited.
Purpose of the Study:
- Develop a program theory for peer online mental health forums.
- Inform users, professionals, and commissioners on forum selection and utilization.
Main Methods:
- Realist evaluation with a mixed-methods case series design.
- Triangulated analysis of web surveys (n=791) and interviews (n=52).
- In-situ analysis of consented forum posts, guided by a patient and public involvement group.
Main Results:
- Largely positive impacts include feeling understood, accepted, increasing self-efficacy, reducing self-stigma, and enhancing mental well-being.
- Positive outcomes are linked to easy navigation, safe posting environments, and responsive moderation.
- Negative impacts arise from poor navigation or inadequate moderation, leading to feelings of being unheard or overburdened.
Conclusions:
- Peer online forums are effective, accessible, and inclusive mental health support tools for many.
- Careful design and well-trained moderators are crucial for maximizing positive impacts.
- Findings inform the development of a moderator toolkit and design guidelines.
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