Evaluation of visual displays to share expected quality of life changes with patients with breast cancer
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View abstract on PubMed
Summary
This summary is machine-generated.Patients prefer simple, longitudinal patient-reported outcome displays for breast surgery decisions. Displays with 3-4 data points were favored over complex or overwhelming formats, aiding shared decision-making.
Area Of Science
- Oncology
- Health Informatics
- Patient-Reported Outcomes
Background
- Shared decision-making in breast cancer surgery can be improved by incorporating patient-reported outcomes (PROs).
- Understanding patient preferences for PRO display styles is crucial for developing effective decision aids.
Purpose Of The Study
- To assess patient preferences for different visual display styles of patient-reported outcome data.
- To inform the design of decision support tools for breast cancer surgery patients.
Main Methods
- Developed 6 visual displays of patient-reported outcome data (BREAST-Q domains).
- Surveyed 59 breast cancer patients (Stage 0-III) on display preferences.
- Analyzed display rankings using statistical models and thematic analysis of open-ended responses.
Main Results
- Three display styles were significantly preferred; two were significantly less preferred.
- No demographic or disease-related variables influenced display preference.
- Patients favored simple displays with longitudinal data, disliking information overload or scarcity.
Conclusions
- Longitudinal patient-reported outcome displays are preferred over complex, multi-domain formats.
- Optimal displays typically present 3-4 data values per figure.
- No single display format suits all patients; further research on multivariable figure interpretation is needed.
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