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Data Resource Profile: The Finnish TwinRegistry Project
Stephanie Zellers1, Sarah Niemi de Paiva1,2, Mikko Olkkonen1
1Institute for Molecular Medicine Finland, University of Helsinki, Helsinki, Finland.
Summary
The Older Finnish Twin Cohort, established 50 years ago, has been linked to extensive Finnish health and social data. This linkage enhances research on health, lifestyle, and aging across generations.
Area of Science:
- Epidemiology
- Gerontology
- Public Health
Background:
- The Older Finnish Twin Cohort, established 50 years ago, comprises twins born before 1958.
- Cohort members completed health and lifestyle questionnaires in 1975, 1981, 1991, and 2011.
Purpose of the Study:
- To describe the linkage of the Older Finnish Twin Cohort with national health and social data registers.
- To create a comprehensive data resource for epidemiological and aging research.
- To include family and population data for enhanced analytical capabilities.
Main Methods:
- Linking the Older Finnish Twin Cohort data with Finnish national social and healthcare registers.
- Incorporating family data and a reference population (born 1945-1957).
- Utilizing the Act on the Secondary Use of Health and Social Data (2019) for data access.
Main Results:
- Successful linkage of the Older Finnish Twin Cohort to extensive health and social data.
- Creation of a rich dataset for longitudinal and cross-sectional analyses.
- Establishment of a reference population for generalizability.
Conclusions:
- The linked dataset provides a valuable resource for studying aging, health, and lifestyle factors.
- This enhanced resource supports broad epidemiological research in Finland.
- Future research can leverage this data for insights into health determinants and outcomes.
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