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Updated: Jan 15, 2026

Involving Individuals with Developmental Language Disorder and Their Parents/Carers in Research Priority Setting

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Published on: June 6, 2020

A framework for disability lived expertise.

Shane Clifton¹, Emma Cooper¹, Johnny Bourke¹

¹Centre for Disability Research and Policy, University of Sydney, Australia.

Evidence & Policy : a Journal of Research, Debate and Practice

|October 10, 2025

Summary

This summary is machine-generated.

This study presents a framework for disability lived expertise, valuing contributions from people with disabilities in policy, services, and research. It defines lived expertise beyond personal experience, emphasizing critical reflection and community engagement for inclusive leadership.

Keywords:

co-design inclusion leadership lived experience

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Published on: February 16, 2011

Area of Science:

Disability Studies
Social Sciences
Public Health

Background:

Contributions of people with disabilities are often undervalued in key sectors.
Existing frameworks may not fully capture the depth of disability lived expertise.
There is a need to formally recognize and integrate lived expertise into policy and practice.

Purpose of the Study:

To introduce a comprehensive framework for disability lived expertise.
To distinguish between disability lived experience and disability lived expertise.
To validate and elevate the knowledge and leadership of people with disabilities.

Main Methods:

Framework development involved seventeen individuals with diverse disabilities.
Key components of lived expertise were identified: leadership qualities, core values, and essential skills/knowledge.
The framework emphasizes critical reflection, community engagement, and resource support.

Main Results:

Disability lived expertise is defined as a dynamic capability built on experience, reflection, and community engagement.
Key components include leadership qualities (self-determination), core values (human rights, solidarity), and skills (social model, intersectionality).
The framework acknowledges complexities of disability identification and advocates for individual choice.

Conclusions:

The framework aims to reshape power imbalances and validate marginalized knowledge.
It empowers people with disabilities for leadership roles in creating a more equitable society.
Formal recognition of disability lived expertise is crucial for inclusive policy and practice.