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Case-Based Clinical Ethics Support - A Description and Normative Discussion of Methodological Issues from the Swedish
Pernilla Pergert1,2, Mia Svantesson3, Cecilia Bartholdson4,5
1Department of Public Health and Caring Sciences, Centre for Research Ethics and Bioethics (CRB), Uppsala University, Uppsala, Sweden. pernilla.pergert@uu.se.
Clinical Ethics Support (CES) provides systematic help for healthcare ethical challenges. Case-based CES (C-CES) in Sweden focuses on decision-making support but needs better clinician engagement and patient involvement.
Area of Science:
- Medical Ethics
- Healthcare Management
- Clinical Practice
Background:
- Clinical Ethics Support (CES) offers systematic assistance for ethical dilemmas in healthcare.
- Case-based CES (C-CES) is a specific method for addressing individual patient cases.
- Understanding the organizational and methodological aspects of C-CES in Swedish healthcare is crucial.
Purpose of the Study:
- To describe and normatively discuss organizational and methodological aspects of C-CES in Swedish healthcare.
- To identify factors influencing the effectiveness and uptake of C-CES.
- To provide recommendations for improving C-CES practices.
Main Methods:
- A mixed-methods approach combining a descriptive survey and a normative group discussion.
- Survey data collected from eight healthcare organizations at hospital, regional, and national levels.
- Qualitative analysis of field notes and transcribed data from expert group discussions.
Main Results:
- The primary goal of C-CES was identified as supporting clinical decision-making.
- C-CES activities varied in frequency and were conducted as both unplanned and pre-planned sessions.
- Key challenges included uneven uptake of C-CES, the need to maintain clinician engagement, and the lack of patient and family involvement.
Conclusions:
- C-CES is valuable for decision-making support but requires careful implementation to remain attractive to clinicians.
- Variations in uptake suggest a need for better alignment with actual ethical challenges.
- Patient and family representation in C-CES processes needs enhancement through further research and interventions.
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