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Consensus Guidelines for the Follow-Up Care of Long-Term Cancer Survivors and Their Families for Primary Care Nurses
Nerea Elizondo Rodríguez1,2, Virginia La Rosa Salas1,2, Marta Domingo-Osle1,2
1Universidad de Navarra, Pamplona, Navarra, Spain.
Abstract:
To develop guidelines for the care of long-term cancer survivors and their families for primary care nurses. A modified Delphi study was conducted. A questionnaire was developed and administered to a panel of 16 expert nurses to obtain consensus. For each identified guideline, consensus needed to exceed 70%, as measured using a Likert-type scale. A two-round Delphi study was conducted to achieve agreement among the expert panel. Round 1 data were analyzed using qualitative content analysis for open-ended responses, while quantitative analysis, including descriptive statistics, was performed in Round 2. After two rounds of evaluation, a final document comprising 58 guidelines across six main themes was established. Of these, 29 guidelines achieved 100% consensus among the experts. The guidelines developed in this study provide a foundation for designing care strategies for long-term cancer survivors and their families, serving as a valuable resource for primary care nurses. By offering a distinct nursing perspective, these guidelines complement existing multidisciplinary frameworks and contribute original, discipline-specific insights to the broader field of survivorship care.
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