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Reaching Consensus on Long COVID Symptoms and Patient-Reported Outcomes Across the Veterans Health Administration
Amelia Schlak1, Ilana Seidel2,3, Omar Awan4,5
1Department of Veterans Affairs, Health System Research Portfolio, Office of Research and Development, Washington, DC.
Background:
A consistent approach to track Long COVID symptoms at the Veterans Health Administration (VHA) was lacking.
Objectives:
To reach consensus among clinical stakeholders on how long COVID symptoms should be assessed at VHA outpatient visits and recommend an assessment battery.
Research Design:
Hybrid Delphi-Nominal Group approach.
Subjects:
Members of the VHA Long COVID Field Advisory Board (FAB) and the VHA Long COVID Community of Practice (CoP) participated. Veteran stakeholders provided input.
Measures:
A literature review and clinician questionnaires identified 68 instruments across 14 symptom domains. In the first consensus round, FAB members excluded instruments with limited clinical usability. The remaining 25 instruments were ranked by CoP members. Multiple rounds of asynchronous voting were conducted until one instrument remained per domain. The top instruments were grouped into 3 batteries. Final consensus on a preferred battery was reached through additional voting. Veterans from the Los Angeles Veteran Engagement Panel assessed clarity, burden, and feasibility.
Results:
The final battery included the Modified Yorkshire COVID-19 Rehabilitation Survey, VHA Whole Health Well-Being Signs, the Exercise Vital Signs Questionnaire, and the 2-Minute Step Test. Whole Health questions were also included to support the VHA's Whole Health System mission. Symptom-specific instruments already used in VHA routine care were not included in the final battery, as clinics already had access to them.
Conclusions:
A structured, rapid consensus process was used to identify a battery of symptom instruments to standardize Long COVID symptom assessment across VHA clinics.
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