Experience of uncertainty in prostate cancer: A qualitative study

  • 0Health in Social Science, The University of Edinburgh, Edinburgh, United Kingdom.

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Summary

This summary is machine-generated.

Uncertainty is a constant challenge for men with prostate cancer, affecting their emotional well-being and relationships throughout treatment and survivorship. Understanding these experiences is key to providing better care.

Area Of Science

  • Oncology
  • Psychosocial Oncology
  • Qualitative Health Research

Background

  • Prostate cancer care often overlooks the lived experience of uncertainty for men.
  • Existing research focuses narrowly on informational needs and pre-treatment phases.
  • Uncertainty beyond informational gaps and post-treatment experiences remains underexplored.

Purpose Of The Study

  • To explore men's experiences of uncertainty throughout their prostate cancer journey.
  • To inform the development of more holistic and responsive cancer care.
  • To address the gap in understanding long-term uncertainty in prostate cancer.

Main Methods

  • Conducted individual semi-structured interviews with 12 men diagnosed with prostate cancer.
  • Included men undergoing or who had completed active treatment.
  • Utilized reflexive thematic analysis for data interpretation.

Main Results

  • Identified four themes: aspects of uncertainty (trajectory, relationships, future), initial responses (distress, avoidance), management strategies (coping, adaptation), and posttraumatic growth.
  • Uncertainty is pervasive, impacting psychological adjustment.
  • Positive changes (posttraumatic growth) can emerge from navigating uncertainty.

Conclusions

  • Uncertainty is a persistent element in prostate cancer survivorship, complicating adjustment.
  • Support interventions must address informational, emotional, and relational aspects of uncertainty.
  • Promoting openness, acceptance, perspective-taking, values-driven living, and dyadic adjustment is crucial.