An information program for parents of cochlear implant candidates

Parents need clear, comprehensive information about the cochlear implant (CI). A standardized program can enhance access, family-centered care, and parental involvement. This study develops aprogram addressing these needs.

Using a mixed-methods exploratory sequential design, Phase1, involved focus groups with six CI team members and seven parents, and semi-structured interviews with company representatives. Qualitative data were analyzed thematically and a survey developed from these findings, was administered to 100 parents of CI users with results analyzed descriptively. Phase 2, the program on the CI process, development with CI, CI devices, and parental experiences was developed, implemented, and evaluated with applied to 32 parents. Its effectiveness was tested experimentally using, t-tests on achievement scores, and social validity was assessed through survey.

Three main themes captures parents' information needs: (1) necessity of the program, (2) structure, and (3) content, comprising twelve sub-themes on specific components. The program proved highly effective and socially valid in meeting parents' needs.

The program addresses a key gap by meeting parents' informational needs and may enhance access to rehabilitation through empowerment. Sample representativeness remains a limitation. Future research should adapt the program to diverse contexts and consider a web-based version for broader access.