Digital Dialogs on Rhesus Incompatibility: A Thematic Analysis of Web-Based Parental Narratives

Ayhan Çeri1, Nazlı Dilay Gültekin1

  • 1Dr. Ali Kemal Belviranli Maternity and Children's Hospital, NICU, Konya, Turkey.

Insights

Parents navigating Rh incompatibility and anti-D prophylaxis online face significant anxiety and misinformation. Improved digital health communication is crucial to address parental concerns and ensure accurate understanding of Rhesus (Rh) D alloimmunization risks and treatments.

Area of Science:

  • Perinatal Medicine
  • Digital Health Communication
  • Qualitative Research

Background:

  • Feto-maternal incompatibilities like Rhesus (Rh) D alloimmunization are significant causes of neonatal morbidity.
  • Despite effective anti-D prophylaxis, confusion and misinformation persist among expectant parents.
  • Online discussions reveal parental concerns and informational needs regarding Rh incompatibility.

Purpose of the Study:

  • To explore parental interpretations and responses to Rh incompatibility through web-based discussions.
  • To identify key concerns, misconceptions, and information gaps related to Rh incompatibility and anti-D prophylaxis.
  • To highlight the need for improved digital health communication strategies for expectant parents.

Main Methods:

  • Qualitative inductive thematic analysis of 312 public online posts (2018-2024) from platforms like Reddit, Facebook, YouTube, and parenting forums.
  • Systematic keyword searches were used to retrieve relevant posts concerning Rh incompatibility and anti-D prophylaxis.
  • Data coding was performed independently by two researchers using NVivo, with iterative theme development.

Main Results:

  • Six major themes emerged: risk perceptions, emotional burden (anxiety, guilt), understanding anti-D, treatment confusion, doctor-patient trust gaps, and community misinformation.
  • Parents reported inadequate explanations from healthcare providers, leading them to seek information online.
  • Online forums often provided conflicting or incorrect information, exacerbating parental confusion and anxiety.

Conclusions:

  • Online narratives reveal parental anxieties and underscore the need for enhanced digital health communication.
  • Clinicians and health systems must develop culturally sensitive, web-based educational strategies to combat misinformation.
  • Addressing parental concerns requires guiding them toward reliable information sources and improving provider-patient communication regarding Rh incompatibility.
Abstract

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