Research priorities in vulvodynia: A modified Delphi study

Area of Science:

• Vulvodynia research
• Chronic pain management
• Patient-centered care

Background:

• Vulvodynia is a chronic pain condition affecting the vulva, with limited understanding and significant patient impact.
• Delayed diagnoses, ineffective treatments, and social stigma compound challenges for affected individuals.
• Current knowledge gaps hinder effective management and research in vulvodynia.

Purpose of the Study:

• To establish research priorities for vulvodynia.
• To address critical knowledge deficits and improve patient outcomes.
• To guide future research and resource allocation for vulvodynia.

Main Methods:

• A mixed-methods participatory study utilizing a modified electronic Delphi (e-Delphi) approach.
• Focus groups were integrated with the e-Delphi process to gather diverse stakeholder perspectives.
• Three phases involved topic generation, rating, ranking, and consensus-building on research priorities.

Main Results:

• Top priorities include person-centered care pathways and enhanced clinician education.
• Development of multidisciplinary pain teams was identified as a key priority.
• Accessible patient information on treatment options and self-care is essential.

Conclusions:

• Integrating patient, clinician, and researcher perspectives is vital for impactful vulvodynia research.
• Study findings provide a roadmap for future research, resource allocation, and policy development.
• Results support initiatives to improve vulvodynia awareness, education, and care.