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Which Patients With Cancer Access Their Clinical Notes? A Disparities Analysis.

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This summary is machine-generated.

Cancer patients face disparities in accessing their clinical notes, with Black, Hispanic, and non-English speakers less likely to access or open notes. Targeted interventions are needed to ensure equitable digital health access for all oncology patients.

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Area of Science:

  • Health Informatics
  • Health Equity
  • Oncology

Background:

  • The 21st Century Cures Act mandates immediate electronic patient access to clinical notes.
  • Technological advancements in healthcare may inadvertently widen existing health disparities.
  • Understanding note access inequities in oncology is crucial for complex care management.

Purpose of the Study:

  • To investigate disparities in clinical note access and opening rates among oncology patients.
  • To identify patient characteristics associated with unequal access to electronic health information.
  • To inform strategies for equitable digital health resource utilization in cancer care.

Main Methods:

  • A retrospective study analyzed clinical notes accessed via patient portals from September 2021 to August 2022.
  • Logistic and Poisson regression models were employed to assess disparities.
  • Patient data from a high-volume specialty cancer center was utilized.

Main Results:

  • Over 124,000 patients and 815,000 notes were included; 43.7% of notes were accessed.
  • Significant disparities in note access were observed based on race, ethnicity, and language.
  • Black, Hispanic, and non-English speakers demonstrated lower rates of note access and opening compared to white, non-Hispanic, English speakers.

Conclusions:

  • Racial, ethnic, and linguistic disparities exist in oncology patients' access to clinical notes.
  • Tailored interventions are essential to bridge the digital divide in healthcare.
  • Ensuring equitable access to digital health tools is vital for diverse patient populations.