A phenomenological study of women with breast cancer-related lymphedema using the healthcare system

Breast cancer-related lymphedema, a chronic condition affecting approximately 30% of breast cancer survivors, leads to significant physical and psychosocial challenges. This study explored the lived experiences of women with breast cancer-related lymphedema, focusing on occupational engagement and healthcare system interactions.

A phenomenological study was conducted with 18 female participants diagnosed with breast cancer-related lymphedema. Semistructured interviews were used to gather participant experiences, and reflexive thematic analysis to develop key themes.

Five main themes emerged: Navigating the Psychosocial Challenges, Enduring Physical Constraints and Dependence on Others, Inconsistencies and Barriers in the Healthcare Journey, The Quest for Knowledge and Accessible Support, and Insights and Recommendations for Comprehensive Care. Findings revealed a significant mental health impact, physical limitations, inconsistent healthcare, and the need for additional supports. Participants emphasized improved mental health support, accessible lymphedema therapy, and increased societal awareness.

This study highlights the mental, physical, and social challenges faced by women with breast cancer-related lymphedema, emphasizing the need for a comprehensive approach to care. Occupational therapists are well-positioned to provide holistic care, including mental and physical health interventions and advocacy for improved healthcare access and resources. Future research is needed on care standardization and comprehensive interventions to address the occupational needs of individuals with breast cancer-related lymphedema.