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Feasibility of Symptom Burden Assessments and Early Palliative Care Integration in an Adolescent and Young Adult
Sarah E Monick1, Collin Hanson2, K Sarah Hoehn3,4
1Department of Medicine, Mayo Clinic Arizona, Phoenix, Arizona, USA.
Abstract:
Adolescents and young adults (AYA; ages 15-39) with acute leukemia have significant unmet supportive care needs. This pilot study integrated same-day palliative care (PC) into an AYA leukemia clinic, measuring symptom burden (SB) with validated symptom assessment tools at baseline, 3, and 6 months. Among 31 patients, moderate-severe symptoms included tiredness, anxiety, and poor appetite. AYAs experienced high SB and psychological distress, regardless of care phase or sociodemographics. With PC integration, tiredness and depression improved significantly; no symptoms worsened. Half of the PC visits led to management changes. Early integration of symptom-focused PC was feasible, value-adding, and well-received by patients.
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