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An Information App (e-TOP) to Support Parents' Information Needs During the First Year at Home After Preterm Birth:

Monique Flierman1,2,3, Eline L Möller1,3, Vincent L Vijn4

  • 1Department of Rehabilitation, Amsterdam Reproduction and Development, Amsterdam UMC Location University of Amsterdam, Meibergdreef 9, Amsterdam, 1105 AZ, The Netherlands, 31 622947431.

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Summary

Parents of preterm infants can use the e-TOP mobile app for tailored, evidence-based information post-discharge. While usable, the app needs enhanced engagement strategies and content for better long-term parental support.

Keywords:
appmHealthmobile healthparental supportpostdischarge carepremature infantsusabilityuser experience

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Area of Science:

  • Digital Health
  • Mobile Health Interventions
  • Parental Support

Background:

  • Parents of preterm infants require accessible information for home care transitions.
  • Mobile health (mHealth) apps can supplement postdischarge education and empower parents.
  • Tailored, evidence-based information is crucial for preterm infant caregiving.

Purpose of the Study:

  • To develop the e-TOP information app using participatory design with parents and healthcare professionals.
  • To evaluate the usability and user engagement of the e-TOP app.

Main Methods:

  • A 2-phase mixed-methods design was employed.
  • Phase 1 involved app development through focus groups with parents and interventionists.
  • Phase 2 assessed usability over 6 months using diverse methods including System Usability Scale (SUS) and interviews.

Main Results:

  • The e-TOP app demonstrated good usability (median SUS score 75) and was perceived as useful.
  • Active engagement showed median usage of 39 minutes and 64 actions per participant over 6 months.
  • Qualitative feedback indicated needs for improved navigation, expanded content, and interactive features.

Conclusions:

  • The e-TOP app is a valuable digital resource for preterm infant parents, supplementing postdischarge care.
  • High usability scores necessitate enhanced retention strategies and content for sustained engagement.
  • Future iterations should focus on inclusivity, particularly for fathers and parents with limited health literacy.