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Refining Methods of Experience-Based Co-Design for Application in Aphasia and Cognitive-Communication Disability
John E Pierce1,2, Nelson J Hernandez1,2, Damminda Alahakoon3
1Centre for Research Excellence in Aphasia Recovery and Rehabilitation, La Trobe University, Melbourne, Victoria, Australia.
American Journal of Speech-Language Pathology
|October 24, 2025
Summary
This study adapted Experience-based Co-design (EBCD) for people with communication disabilities to co-design a self-management platform. Modifications enabled meaningful participation, improving co-design research inclusion.
Area of Science:
- Rehabilitation research
- Human-computer interaction
- Assistive technology
Background:
- Co-design is increasingly mandated, requiring inclusive methods for diverse populations.
- Standard co-design practices pose challenges for individuals with communication disabilities.
- Experience-based Co-design (EBCD) is a popular approach needing adaptation for this group.
Purpose of the Study:
- To outline modifications of EBCD for co-designing a technology-enabled self-management platform.
- To facilitate the meaningful inclusion of people with communication disabilities in research.
- To adapt EBCD for individuals with post-stroke aphasia and cognitive-communication disability.
Main Methods:
- Adapted EBCD methodology across four stages: project setup, experience gathering, and priority identification.
- Involved participants with communication disabilities (n=8), care partners (n=3), and health professionals (n=20).
- Utilized video-recorded interviews, focus groups, and structured prioritization workshops.
Main Results:
- Developed practical adaptations to EBCD, including text-based video editing for touchpoint films.
- Implemented nonlinear challenge presentation and visual aids to enhance engagement and prioritization.
- Successfully supported meaningful participation of all co-designers, including those with communication disabilities.
Conclusions:
- This method article details practical adaptations of EBCD for communication disability.
- Contributes to knowledge on inclusive co-design practices for individuals with communication impairments.
- Offers a framework for future EBCD projects aiming for broader participant inclusion.
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