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  1. Home
  3. Refining Methods Of Experience-based Co-design For Application In Aphasia And Cognitive-communication Disability.
  1. Home
  3. Refining Methods Of Experience-based Co-design For Application In Aphasia And Cognitive-communication Disability.

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Refining Methods of Experience-Based Co-Design for Application in Aphasia and Cognitive-Communication Disability.

John E Pierce1,2, Nelson J Hernandez1,2, Damminda Alahakoon3

  • 1Centre for Research Excellence in Aphasia Recovery and Rehabilitation, La Trobe University, Melbourne, Victoria, Australia.

American Journal of Speech-Language Pathology
|October 24, 2025

View abstract on PubMed

Summary
This summary is machine-generated.

This study adapted Experience-based Co-design (EBCD) for people with communication disabilities to co-design a self-management platform. Modifications enabled meaningful participation, improving co-design research inclusion.

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Area of Science:

  • Rehabilitation research
  • Human-computer interaction
  • Assistive technology

Background:

  • Co-design is increasingly mandated, requiring inclusive methods for diverse populations.
  • Standard co-design practices pose challenges for individuals with communication disabilities.
  • Experience-based Co-design (EBCD) is a popular approach needing adaptation for this group.

Purpose of the Study:

  • To outline modifications of EBCD for co-designing a technology-enabled self-management platform.
  • To facilitate the meaningful inclusion of people with communication disabilities in research.
  • To adapt EBCD for individuals with post-stroke aphasia and cognitive-communication disability.

Main Methods:

  • Adapted EBCD methodology across four stages: project setup, experience gathering, and priority identification.
  • Involved participants with communication disabilities (n=8), care partners (n=3), and health professionals (n=20).
  • Utilized video-recorded interviews, focus groups, and structured prioritization workshops.

    • Main Results:

    • Developed practical adaptations to EBCD, including text-based video editing for touchpoint films.
    • Implemented nonlinear challenge presentation and visual aids to enhance engagement and prioritization.
    • Successfully supported meaningful participation of all co-designers, including those with communication disabilities.

    Conclusions:

    • This method article details practical adaptations of EBCD for communication disability.
    • Contributes to knowledge on inclusive co-design practices for individuals with communication impairments.
    • Offers a framework for future EBCD projects aiming for broader participant inclusion.