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A todo pulmon: co-designing a health initiative for pediatric asthma amid COVID-19
Denisse Vasquez-Guevara1, Fabiola Zavala-Sanchez2, Tania Barrezueta-Cabrera3
1Communication Department, California State Polytechnic University Pomona, Pomona, CA, USA.
Insights
Pediatric asthma self-management education is crucial for patients and caregivers. Co-designed initiatives using social media and interactive activities can improve asthma self-management (ASM) and adherence to treatment.
Area of Science:
- Pediatric pulmonology
- Health education
- Qualitative research
Background:
- Pediatric asthma self-management (ASM) is vital for patients and caregivers, influenced by various barriers and facilitators.
- The COVID-19 pandemic created challenges, with many pediatric asthma patients avoiding necessary medical check-ups due to contagion fears.
- Understanding these dynamics is key to developing effective asthma management strategies.
Purpose of the Study:
- To co-design a health initiative promoting pediatric asthma self-management (ASM) using a socio-cognitive model.
- To address barriers and facilitators impacting ASM and treatment adherence in pediatric asthma patients.
- To develop tailored interventions based on patient and caregiver knowledge and needs.
Main Methods:
- A qualitative-participatory approach was employed, involving focus groups with pediatric asthma patients and caregivers in Cuenca, Ecuador.
- Collaborative sessions utilized participatory diagrams and mock pieces for co-creating ASM activities.
- Data analysis involved open coding for asthma issues and thematic coding aligned with Global Initiative for Asthma (GINA) protocols.
Main Results:
- Participants expressed a strong preference for learning about pediatric asthma self-management (ASM) through video tutorials on social media platforms.
- Interactive play-and-learn activities were also identified as a preferred method for engaging pediatric asthma patients and caregivers.
- These findings highlight the potential of digital and interactive educational tools.
Conclusions:
- Online and social media platforms offer effective channels for educating pediatric asthma patients on self-management strategies.
- Participatory co-design is a valuable approach, fostering collaboration between patients and researchers to create effective, tailored health initiatives.
- These methods can promote improved education and the adoption of healthy behaviors for pediatric asthma management.
Background:
Pediatric asthma self-management (ASM) concerned patients and caregivers both before and after the COVID-19 pandemic. Studies have shown that barriers and facilitators directly influence self-management and treatment adherence. COVID-19 significantly hindered asthma patients, as many avoided medical check-ups due to fears of contagion.
Methods:
We used a qualitative-participatory approach to co-design a health initiative that promotes pediatric ASM guided by the socio-cognitive model (SCT) informed by Latin American scholarship and prior studies in health education. We held focus groups with patients and caregivers in Cuenca, Ecuador. In these collaborative sessions, we used participatory diagrams and mock pieces to co-create activities to improve ASM based on participants' knowledge and needs. For the analysis, we used two coding layers: open coding to identify common asthma issues and thematic coding aligned with the Global Initiative for Asthma (GINA) management protocols to understand self-management challenges.
Results:
Participants preferred learning about ASM through video tutorials on social media and interactive play-and-learn activities.
Conclusion:
Online and social media platforms can be used to successfully educate patients on ASM. Additionally, participatory co-design facilitates collaboration among patients and researchers to develop tailored health initiatives to promote education and adopting healthy behaviors.
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