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Trained Accompanying Patients (APs) provide structured support for hematological cancer patients undergoing cellular therapy. This peer support addresses practical, emotional, and psychological needs, enhancing patient care and experience.

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Area of Science:

  • Oncology
  • Patient Support
  • Healthcare Delivery

Background:

  • Hematological cancer patients experience significant distress and unmet needs, particularly for personalized emotional support.
  • Cellular therapies for hematological cancers are complex, requiring comprehensive patient care.
  • Existing support systems may not adequately address the unique challenges faced by these patients.

Purpose of the Study:

  • To co-develop and evaluate a structured peer support program utilizing trained Accompanying Patients (APs) for individuals with hematological cancers undergoing cellular therapy.
  • To identify the anticipated needs APs can address, their role within the care team, and implementation strategies.
  • To explore facilitators and challenges in integrating APs into the patient care pathway.

Main Methods:

  • A participatory action research approach was employed, involving three working sessions with 16 key stakeholders.
  • Thematic analysis was conducted on data from group discussions to identify essential components, barriers, and facilitators.
  • The study focused on co-developing structured support pathways for APs.

Main Results:

  • Accompanying Patients (APs) can effectively address a broad spectrum of practical, emotional, social, and psychological needs.
  • APs enhance patient understanding of their treatment and promote continuity of care.
  • Key implementation factors include clear role definitions, comprehensive training, supportive tools, and addressing organizational/communication challenges.

Conclusions:

  • Structured peer support by trained APs is a promising model for improving the patient experience in hematological cancer care, especially with cellular therapies.
  • This initiative offers a novel approach to foster relational continuity and support cancer survivors throughout their care continuum.
  • Successful implementation requires careful planning regarding AP roles, training, and organizational integration.