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Unmet Needs of Systemic Lupus Erythematosus (SLE) Patients: Insights from a Needs Assessment Study
1College of Pharmacy, University of North Texas Health Science Center, 3500 Camp Bowie Blvd, Fort Worth, TX 76107, USA.
Abstract:
Systemic Lupus Erythematosus (SLE) is a multifaceted autoimmune disease that requires individualized care and informed patient counseling. Pharmacists are well-positioned to support SLE patients, yet gaps in knowledge and preparedness among pharmacy professionals may hinder optimal care. This study aimed to identify unmet educational and clinical needs related to SLE among pharmacy students and faculty, with the goal of informing strategies to incorporate SLE-focused education into pharmacy curricula. A systematic review of existing needs assessments was conducted, followed by a survey exploring participants' confidence, knowledge, and perceived preparedness in managing SLE. Results revealed significant disparities in understanding and confidence, particularly among students. Faculty demonstrated moderate confidence in areas such as medication counseling and lifestyle guidance, while students reported low confidence in discussing self-care, psychosocial support, and disease management. Both groups expressed uncertainty about tools and strategies for patient education and engagement. These findings highlight educational gaps in pharmacy students' and faculty's preparedness to manage SLE, underscoring the need to use these insights as a foundation for curricular development. Integrating these materials into pharmacy curricula and continuing education programs can enhance pharmacists' ability to deliver empathetic, informed, and patient-centered care. This study supports a broader effort to improve chronic disease management through interdisciplinary collaboration and educational innovation.
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